Cystic fibrosis is a chronic, potentially deadly disease that affects one’s respiratory and digestive systems. “It’s like having bronchitis every day of your life,” said Angela Spera, whose 10 year old son lives with the condition.
Spera is one of many committed to fundraising for the Cystic Fibrosis Foundation in hopes of one day finding a cure. Here are some of the more unique fundraisers--
This year marks the sixth annual PirateFest in Orange Beach, Alabama. Attendees can enjoy live music, arts and crafts, food and drink, and of course dress up like a pirate. The yearly festival is spearheaded by Henry and Angela Bateman, whose son has cystic fibrosis. Over the past five years, PirateFest has raised over $35,000 for the Cystic Fibrosis Foundation.
If you enjoy running and don’t mind being attacked by hillbillies, then you should check out the annual Hillbilly Run in Chunky, Mississippi. This fun run offers plenty of mud as well as obstacles made from hay, water, and even pumpkins. And of course, there will be angry hillbillies chasing you! Costumes are encouraged, as are towels and changes of clothes.
Taste of the Tier
But if pirates and hillbillies aren’t your cup of tea, there’s always the Taste of the Tier in Binghmton, New York. The event, organized by Spera, brings together restaurants and wineries from all over the region so attendees can enjoy great food and drink, while supporting a good cause. In addition to raising funds for the Cystic Fibrosis Foundation, Taste of the Tier also honors those in the community who volunteer to help battle the disease.